Interactions with Patient Organizations

2_Partnerships

Συνεργασία με συλλόγους ασθενών το 2017

Patient Organisation Name  Purpose of the Patient Organization Description of the sponsorship Date of Payment Sponsorship value (Euro)
Σύλλογος Ατόμων με Νόσο του Crohn και Ελκώδη Κολίτιδα Ελλάδας (HELLESCC) Προώθηση και υπεράσπιση των δικαιωμάτων των ασθενών με νόσο του Crohn και Ελκώδη κολίτιδα.  The grant will be used for three purposes:1) € 3.000 for printing 3.000 copies of informative material titled: “Inflammatory Bowel Diseases” and 3.000 copies titled: “Quality of life of patients suffering from IBD”, 2) € 1.000 for live streaming and recording of the two events that HELLESCC is planning for autumn and December 2017, 3) € 1.000 for purchasing 100 t-shirts for the volunteers of HELLESCC 20/12/2017 5.000    
ΠΑΝΕΛΛΗΝΙΑ ΕΝΩΣΗ ΣΠΑΝΙΩΝ ΠΑΘΗΣΕΩΝ (PESPA ) The Greek Alliance for Hellenic Diseases (PESPA) is an umbrella of patients with rare diseases Sponsorship of " 5th Educational Seminar for Patients with Rare Disease" organised by greek alliance PESPA with subject "Fighting for the rights and health of patients with rare diseases in Greece".It is provided as a financial support to the HCO for the creation and printing of the event's  posters, programmes and invitations. 18/10/2017 1.500
ΠΑΝΕΛΛΗΝΙΑ ΕΝΩΣΗ ΣΠΑΝΙΩΝ ΠΑΘΗΣΕΩΝ (PESPA ) The Greek Alliance for Hellenic Diseases (PESPA) is an umbrella of patients with rare diseases The grant will be used for updating the online software of the registry so as to broaden the accuracy and the amount of the information added 31/03/2017 1.200

 

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