Better Health, Brighter Future
| Patient Organisation | Amount of Funding | Involvement | Description of Services |
| Above and Beyond - Bristol City Centre Hospitals Charity | £ 1,000.00 | Financial Support | Sponsorship of Inherited Cardiovascular Conditions Conference |
| ADDISS | £ 11,000.00 | Financial Support | ADHD SoS Service Project |
| Adult ADHD NI (ADD-NI) | £ 5,000.00 | Financial Support | Emergency COVID funding |
| Age UK | £ 10,000.00 | Financial Support | Emergency COVID funding |
| Fabry International Network | £ 600.00 | Contracted services | Registration for FIN 2019 Expert Meeting |
| Fabry International Network | £ 120.00 | Contracted services | Honorarium for Contracted Services |
| Fabry International Network | $ 38.65 | Contracted services | Expenses for Contracted Services |
| FareShare | £ 10,000.00 | Financial Support | Emergency COVID funding |
| Genetic Alliance UK | £ 5,000.00 | Financial Support | Emergency COVID funding |
| Genetic Alliance UK | £ 5,000.00 | Financial Support | Rare Disease Day 2020 Campaign |
| Genetic Alliance UK | £ 6,000.00 | Financial Support | Resetting the Model Phase 2 Project |
| Genetic Alliance UK | £ 12,000.00 | Financial Support | Rare disease UK industry membership renewal |
| HAE UK | £ 3,020.00 | Financial Support | Emergency COVID funding |
| HAE UK | £ 10,000.00 | Financial Support | Core Activities |
| Hypopara UK | £ 1,285.00 | Contracted services | Honorarium for Contracted Services |
| Hypopara UK | £ 322.47 | Contracted services | Travel expense reimbursement in relation to participation in a Takeda organised Patient Organisation workshop in August 2019 |
| International Gaucher Alliance | £ 45,000.00 | Financial Support | International Gaucher Alliance 2020 work programme |
| IPOPI: International Patient Organization for Primary Immunodeficiency | € 250,000.00 | Financial Support | Core Activities |
| IPOPI: International Patient Organization for Primary Immunodeficiency | £ 650.00 | Contracted services | Honorarium for Contracted Services |
| Metabolic Support UK | £ 10,000.00 | Financial Support | Emergency COVID funding |
| Over the Wall | £ 20,000.00 | Financial Support | Camp on the Cloud project |
| PID UK | £ 10,000.00 | Financial Support | Core Activities |
| PINNT | £ 5,000.00 | Financial Support | Core Activities |
| PINNT | £ 4,700.00 | Financial Support | HAN week |
| The British Society of Echocardiography | £ 3,600.00 | Financial Support | Meeting sponsorship |
| The Childhood Trust | £ 300.00 | Financial Support | Volunteer Project |
| The Childhood Trust | £ 10,000.00 | Financial Support | Emergency COVID funding |
| The Gauchers Association Ltd | £ 10,000.00 | Financial Support | Emergency COVID funding |
| The Gauchers Association Ltd | £ 19,350.00 | Financial Support | Patient and Family Support Services |
| The Haemophilia Society | £ 5,000.00 | Financial Support | Talking Red project |
| The Haemophilia Society | £ 130.00 | Contracted services | Honorarium for Contracted Services |
| The Haemophilia Society | £ 15,000.00 | Financial Support | Talking Red Event |
| The MPS Society | £ 250.00 | Contracted services | Honorarium for Contracted Services |
| The MPS Society | £ 400.00 | Contracted services | Honorarium for Contracted Services |
| The MPS Society | € 103.76 | Contracted services | Expenses for Contracted Services |
| The MPS Society | £ 811.00 | Contracted services | Expenses for Contracted Services |
| The MPS Society | £ 8,550.00 | Financial Support | FIND - MPS UK Collaboration project |
| The MPS Society | £ 5,000.00 | Financial Support | Core Activites |
| The MPS Society | £ 45,000.00 | Financial Support | Reaching Families in Need programme |
| The MPS Society | £ 5,500.00 | Financial Support | Emergency COVID funding |
| The MPS Society | £ 16,250.00 | Financial Support | Development of patient information materials |
| The Police Community Clubs of Great Britain | £ 1,000.00 | Financial Support | Core Activities |
| UK PIPS | £ 10,000.00 | Financial Support | Emergency COVID funding |
| UK PIPS | £ 7,584.00 | Financial Support | Core Activities |
| Patient Organisation | Amount of Funding | Involvement | Description of Services |
| Irish Platform for Patient Organisations, Science and Industry (IPPOSI) | € 8,500.00 | Contracted services | IPPOSI Membership Fees 2020 |
| Irish Platform for Patient Organisations, Science and Industry (IPPOSI) | € 3,000.00 | Financial Support | 2020 IPPOSI Conference – Patient Involvement in the Irish Health System |
| Rare Diseases Ireland | € 3,500.00 | Financial Support | 2020 Membership Fee |
| The Saoirse Foundation | £ 7,500.00 | Financial Support | Donation to The Saorise Foundation in relation to support of the BUMBLEance, Children's National Ambulance Service |
| Irish Haemophilia Society | € 390.00 | Contracted services | Contracted Services |
| Irish Haemophilia Society | € 552.50 | Contracted services | Contracted Services |
EXA/GB/CORP/0011
Date of preparation: Sept 2021