Better Health, Brighter Future
|
Patient Organisation |
Amount of Funding |
Involvement |
|
ADHD Foundation |
£20000 |
Event support(Direct) |
|
ADHD Norfolk |
£70 |
Fee For Service Related Expenses (Direct) |
|
Adult ADHD NI |
£4968 |
Event support(Direct) |
|
Cardiomyopathy UK
|
£3500 |
Event support(Direct) |
|
European Gaucher Alliance
|
£27247
|
Organisational Support (Direct) |
|
European Gaucher Alliance
|
€64
|
Fee For Service Related Expenses (Direct) |
|
European Gaucher Alliance
|
£698
|
Fee For Service Related Expenses (Direct) |
|
European Gaucher Alliance
|
£45560
|
Organisational Support (Direct) |
|
European Gaucher Alliance
|
£800 |
Fee For Service (Direct) |
|
European Gaucher Alliance
|
£4500
|
Fee For Service (Direct) |
|
European Gaucher Alliance
|
£2550
|
Fee For Service (Direct) |
|
European Gaucher Alliance
|
£1193
|
Fee For Service (Direct) |
|
European Gaucher Alliance
|
£819 |
Fee For Service (Direct) |
|
European Gaucher Alliance
|
£242
|
Fee For Service Related Expenses (Direct) |
|
Fabry International Network
|
£62350
|
Organisational Support(Direct) |
|
Fabry International Network
|
€1120
|
Event support(Direct) |
|
Fabry International Network
|
€59 |
Fee For Service Related Expenses (Direct) |
|
Fabry International Network
|
€240 |
Fee For Service (Direct) |
|
Fabry International Network
|
€1440
|
Event support(Direct) |
|
Genetic Alliance UK
|
€176 |
Fee For Service Related Expenses (Direct) |
|
Genetic Alliance UK
|
£80 |
Fee For Service Related Expenses (Direct) |
|
Genetic Alliance UK
|
£10000
|
Healthcare Organization Donations (Direct) |
|
Genetic Alliance UK
|
328 CHF |
Fee For Service Related Expenses (Direct) |
|
Genetic Alliance UK
|
£1800 |
Fee For Service (Direct) |
|
Genetic Alliance UK |
£11000 |
Healthcare Organisation Donations (Direct) |
|
HAE UK |
£74 |
Fee For Service Related Expenses (Direct) |
|
HAE UK |
£167 |
Scientific HCP Education or Medical Sponsorship of Event (Direct) |
|
HAE UK |
£750 |
Fee For Service (Direct) |
|
Honeypot Children's Charity
|
£180 |
Fee For Service (Direct) |
|
IPOPI: International Patient Organization for Primary Immunodeficiency
|
£1680 |
Fee For Service (Direct) |
|
IPOPI: International Patient Organization for Primary Immunodeficiency
|
£89 |
Fee For Service Related Expenses (Direct) |
|
IPOPI: International Patient Organization for Primary Immunodeficiency
|
€56625
|
Promotional and Informational HCP Education or Commercial Sponsorship of Event (Direct) |
|
IPOPI: International Patient Organization for Primary Immunodeficiency
|
€270000
|
Promotional and Informational HCP Education or Commercial Sponsorship of Event (Direct) |
|
IPOPI: International Patient Organization for Primary Immunodeficiency |
€1769
|
Fee For Service (Direct) |
|
International Gaucher Alliance
|
£470 |
Fee For Service (Direct) |
|
International Gaucher Alliance
|
£100 |
Fee For Service Related Expenses (Direct) |
|
International Gaucher Alliance
|
£116 |
Fee For Service Related Expenses (Direct) |
|
International Gaucher Alliance
|
£1193 |
Fee For Service (Direct) |
|
Narcolepsy UK
|
£480 |
Fee For Service (Direct) |
|
Narcolepsy UK
|
£480 |
Fee For Service (Direct)
|
|
Oxford Radcliffe Hospitals Charitable Funds
|
£66 |
Fee For Service Related Expenses (Direct) |
|
Oxford Radcliffe Hospitals Charitable Funds
|
£680 |
Fee For Service (Direct) |
|
Royal Free Charity
|
£3745 |
Educational Grants - Accredited and Non-accredited Educational Activities (Direct) |
|
The Gauchers Association Ltd |
£23218 |
Event support(Direct) |
|
The Haemophilia Society
|
£30000 |
Promotional and Informational HCP Education or Commercial Sponsorship of Event (Direct) |
|
The MPS Society
|
738 CHF |
Fee For Service Related Expenses (Direct)
|
|
The MPS Society
|
£69 |
Fee For Service Related Expenses (Direct) |
|
The MPS Society
|
£260 |
Fee For Service (Direct) |
|
The MPS Society
|
€176 |
Fee For Service Related Expenses (Direct) |
|
The MPS Society
|
£2100 |
Fee For Service (Direct) |
|
The MPS Society
|
£10000 |
Healthcare Organisation Donations (Direct) |
|
The MPS Society
|
£200 |
Fee For Service (Direct) |
|
The MPS Society
|
£30000
|
Healthcare Organization Donations (Direct) |
|
The MPS Society
|
£40000 |
Educational Grants - Accredited and Non-accredited Educational Activities (Direct) |
|
The MPS Society
|
€15 |
Fee For Service Related Expenses (Direct) |
|
The MPS Society
|
£600 |
Fee For Service (Direct) |
|
The Trustees Imperial College Healthcare Charity |
£260 |
Event support(Direct) |
|
UK PIPS |
£15000 |
Event support(Direct) |
Shire Ireland’s support provided to Patient Organisations during 2019.
|
Patient Organisation |
Amount of Funding |
Involvement |
|
Irish Haemophilia Society |
€770 |
Fee For Service (Direct) |
|
Irish Haemophilia Society
|
€7500 |
Fee For Service (Direct) |
|
Irish Platform for Patient Organisations, Science and Industry (IPPOSI)
|
€8500 |
Fee For Service Related Expenses (Direct) |
|
Irish Platform for Patient Organisations, Science and Industry (IPPOSI)
|
€2500 |
Fee For Service Related Expenses (Direct) |
|
Rare Diseases Ireland
|
€2500 |
Event support(Direct) |
|
Rare Diseases Ireland
|
€3300 |
membership of Roundtable of Companies
|
|
Suicide or Survive ltd
|
€1000 |
Healthcare Organisation Donations (Direct) |
|
The Barretstown Gang Camp Fund Ltd
|
€10639 |
Fee For Service Related Expenses (Direct) |
EXA/GB/CORP/0140
Date of Production: March 2023