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2019 Support

Shire UK support provided to Patient Organisations during 2019.

Patient Organisation

Amount of Funding

Involvement

ADHD Foundation

£20000

Event support(Direct)

ADHD Norfolk

£70

Fee For Service Related Expenses (Direct)

Adult ADHD NI

£4968

Event support(Direct)

Cardiomyopathy UK

 

£3500

Event support(Direct)

European Gaucher Alliance

 

£27247

 

Organisational Support (Direct)

European Gaucher Alliance

 

€64

 

Fee For Service Related Expenses (Direct)

European Gaucher Alliance

 

£698

 

Fee For Service Related Expenses (Direct)

European Gaucher Alliance

 

£45560

 

Organisational Support (Direct)

European Gaucher Alliance

 

£800

Fee For Service (Direct)

European Gaucher Alliance

 

£4500

 

Fee For Service (Direct)

European Gaucher Alliance

 

£2550

 

Fee For Service (Direct)

European Gaucher Alliance

 

£1193

 

Fee For Service (Direct)

European Gaucher Alliance

 

£819

Fee For Service (Direct)

European Gaucher Alliance

 

£242

 

Fee For Service Related Expenses (Direct)

Fabry International Network

 

£62350

 

Organisational Support(Direct)

Fabry International Network

 

€1120

 

Event support(Direct)

Fabry International Network

 

€59

Fee For Service Related Expenses (Direct)

Fabry International Network

 

€240

Fee For Service (Direct)

Fabry International Network

 

€1440

 

Event support(Direct)

Genetic Alliance UK

 

€176

Fee For Service Related Expenses (Direct)

Genetic Alliance UK

 

£80

Fee For Service Related Expenses (Direct)

Genetic Alliance UK

 

£10000

 

Healthcare Organization Donations (Direct)

Genetic Alliance UK

 

328 CHF

Fee For Service Related Expenses (Direct)

Genetic Alliance UK

 

£1800

Fee For Service (Direct)

Genetic Alliance UK

£11000

Healthcare Organisation Donations (Direct)

HAE UK

£74

Fee For Service Related Expenses (Direct)

HAE UK

£167

Scientific HCP Education or Medical Sponsorship of Event (Direct)

HAE UK

£750

Fee For Service (Direct)

Honeypot Children's Charity

 

£180

Fee For Service (Direct)

IPOPI: International Patient Organization for Primary Immunodeficiency

 

£1680

Fee For Service (Direct)

IPOPI: International Patient Organization for Primary Immunodeficiency

 

£89

Fee For Service Related Expenses (Direct)

IPOPI: International Patient Organization for Primary Immunodeficiency

 

€56625

 

Promotional and Informational HCP Education or Commercial Sponsorship of Event  (Direct)

IPOPI: International Patient Organization for Primary Immunodeficiency

 

€270000

 

Promotional and Informational HCP Education or Commercial Sponsorship of Event  (Direct)

IPOPI: International Patient Organization for Primary Immunodeficiency

€1769

 

Fee For Service (Direct)

International Gaucher Alliance

 

£470

Fee For Service (Direct)

International Gaucher Alliance

 

£100

Fee For Service Related Expenses (Direct)

International Gaucher Alliance

 

£116

Fee For Service Related Expenses (Direct)

International Gaucher Alliance

 

£1193

Fee For Service (Direct)

Narcolepsy UK

 

£480

Fee For Service (Direct)

Narcolepsy UK

 

£480

Fee For Service (Direct)

 

Oxford Radcliffe Hospitals Charitable Funds

 

£66

Fee For Service Related Expenses (Direct)

Oxford Radcliffe Hospitals Charitable Funds

 

£680

Fee For Service (Direct)

Royal Free Charity

 

£3745

Educational Grants - Accredited and Non-accredited Educational Activities (Direct)

The Gauchers Association Ltd

£23218

Event support(Direct)

The Haemophilia Society

 

£30000

Promotional and Informational HCP Education or Commercial Sponsorship of Event  (Direct)

The MPS Society

 

738 CHF

Fee For Service Related Expenses (Direct)

 

The MPS Society

 

£69

Fee For Service Related Expenses (Direct)

The MPS Society

 

£260

Fee For Service (Direct)

The MPS Society

 

€176

Fee For Service Related Expenses (Direct)

The MPS Society

 

£2100

Fee For Service (Direct)

The MPS Society

 

£10000

Healthcare Organisation Donations (Direct)

The MPS Society

 

£200

Fee For Service (Direct)

The MPS Society

 

£30000

 

Healthcare Organization Donations (Direct)

The MPS Society

 

£40000

Educational Grants - Accredited and Non-accredited Educational Activities (Direct)

The MPS Society

 

€15

Fee For Service Related Expenses (Direct)

The MPS Society

 

£600

Fee For Service (Direct)

The Trustees Imperial College Healthcare Charity

£260

Event support(Direct)

UK PIPS

£15000

Event support(Direct)

 

Shire Ireland’s support provided to Patient Organisations during 2019.

Patient Organisation

Amount of Funding

Involvement

Irish Haemophilia Society

€770

Fee For Service (Direct)

Irish Haemophilia Society

 

€7500

Fee For Service (Direct)

Irish Platform for Patient Organisations, Science and Industry (IPPOSI)

 

€8500

Fee For Service Related Expenses (Direct)

Irish Platform for Patient Organisations, Science and Industry (IPPOSI)

 

€2500

Fee For Service Related Expenses (Direct)

Rare Diseases Ireland

 

€2500

Event support(Direct)

Rare Diseases Ireland

 

€3300

membership of Roundtable of Companies

 

Suicide or Survive ltd

 

€1000

Healthcare Organisation Donations (Direct)

The Barretstown Gang Camp Fund Ltd

 

€10639

Fee For Service Related Expenses (Direct)

 

C-ANPROM/UK//2921

Date of Production – June 2020