Rare Diseases Are Really Not Rare
That was the key takeaway message as Takeda joined forces with patient organizations around the world to support the global call to action led by EURORDIS (Rare Diseases Europe) to “Reframe Rare”. To recognize the rare disease community as part of Rare Disease Day 2020, Takeda launched a “Constellation of Rare Stars” honoring patients, families, caregivers, healthcare professionals and community members who “Reframe Rare”.
The campaign shines a light on the global impact of rare diseases and celebrates the people in the rare disease community who put action behind words and create hope for people living with a rare disease. It also illustrates how light from each of these “Rare Stars” converges to create a collective strength and brightness together.
Indeed, with 6,000 diseases classified as rare diseases impacting more than 300 million people world-wide, you might know someone with a rare disease. i,ii
With 1:20 people affected by a rare disease, we are proud that we at Takeda continue to follow our passion and pursuit of developing life-changing treatments for patients. Rooted in our distinguished 238-year history in Japan, we know that every patient count.
Takeda Celebrates Rare Disease Day on YouTube
“At Takeda, we are dedicated to creating a deeper emotional connection for patients and their support systems,” said Camilla Soenderby, Takeda’s Chief Patient Value & Product Strategy Officer. “With more than 80 years of leadership in rare diseases, we work toward more equitable access to diagnosis, treatment, care and social opportunity for every patient living with a rare disease. Rare Disease Day allows us to amplify the patient voice by working alongside patient organizations around the world to ‘Reframe Rare’.”
Rare is strong. Rare is proud. Rare is many.
Learn more about rare diseases and our Rare Disease Day celebration of Rare Stars on #rarediseaseday, #reframerare, #rarestars.
i Nguengang Wakap S, Lambert D M, Olry A, Rodwell C, Gueydan C, Lanneau V, Murphy D, Le Cam Y, Rath A. Estimating cumulative point prevalence of rare diseases: analysis of the Orphanet database. European Journal of Human Genetics, 2019.
ii Rare Disease Day Information Pack. EURORDIS Rare Disease Day Website. http://download2.rarediseaseday.org/2020/infopack-2020.pdf. Accessed on December 9, 2019.