There is a place for everyone in our rare disease community. Rare2Aware, Takeda’s online social media platform, brings together patients – those seeking diagnosis, newly diagnosed or living with their disease for a long time – their family members, caregivers, healthcare professionals, and advocates. First formed in 2016, the Rare2Aware community is now over 80,000 individuals strong, across Twitter, Facebook and Instagram.
Rare2Aware is designed to champion and invite others to champion people living with a rare disease no matter of their circumstance or situation. It provides space to share, learn and contribute to raise awareness of rare conditions and the unmet patient need within this space. With a global audience and wide reach, our community can share their own experiences of living with a rare disease and support others around the world who face similar challenges. Living with a rare disease may be isolating, but together we are stronger.
At Takeda we are truly proud of Rare2Aware, and the part it plays in supporting the rare disease community. As we work towards our commitment to help address health inequities and delayed diagnosis, we hope the platform can be used by the community to share experiences, raise awareness, support each other and come together to make a difference that improves lives for people living with rare diseases.