Takeda is proud to host the first ever Nordic Rare Disease Summit in the afternoon, 12th and 13th of April 2021.
Together with our co-host, Rare Diseases Denmark (Sjældne Diagnoser) we set out on a common aspiration to elevate rare diseases as a national health priority in the Nordic countries.
The Rare Disease Summit will evolve around three themes: Diagnostic Delay, Patient Empowerment and Patients Access to Innovative Treatment.
Key note speakers and panelists include:
For more information about the Nordic Rare Disease Summit 2021, including the possibility for participation, please contact Charlotte Engel Møller, Senior Coordinator, Takeda Denmark:
Note: Health Care Professionals from Danish hospitals need to contact their own management if they would like to participate.
Prominent organizations from across the Nordic countries and the wider Europe have joined as partners:
EURORDIS, a non-governmental patient-driven alliance of patient organizations representing 932 rare disease patient organizations in 73 countries, SBONN, a network of six umbrella patient organizations for rare diseases in five Nordic countries and The Danish Association of the Pharmaceutical Industry (Lif).
The following organizations have endorsed the Nordic Rare Disease Summit: